Welcome to the Carcinoid Cancer Awareness Network!
Please check our Important Dates as new conferences and fund raisers have been added!
Smoking Butt Raffle Tickets On Sale here!
2012 Conference DVDs on Sale Now $18
CCAN was awarded 2012 Top Rated Non Profit by Great Non profits. A Big thanks to all our supporters and the community!
Maryann Wahmann Founder of CCAN and the 2010 recipient of the Warner advocacy award.
WHAT IS CARCINOID CANCER? Carcinoid is part of a group of tumors called neuroendocrine tumors that grow in the hormone producing cells, is listed with the National Organization of Rare Disorders.
Because neuroendocrine (NET) cancer is considered rare and due to a lack of public awareness the disease has had a low priority for medical research. Current studies suggest that Carcinoid and Neuroendocrine tumors are not as rare once thought.
Over 11,000 new patients are diagnosed each year and as many as 125,000 patients are living in the US today- AND the number of diagnoses is increasing by more than 5% annually.
Carcinoid/NETs are also regularly overlooked during the diagnostic process. Many patients go untreated for years and have been told the have another disease. However, due to the generosity and selfless effort of many people, progress IS being made!
If the tumors are found early and you get proper treatment, you can live a long life. There are many 20 year survivors living in the USA. Failure to diagnose the disease and provide proper treatment, however, has the most serious consequence.
Information & encouragement for
Carcinoid & other Neuroendocrine Cancer patients, their families.
Speak to the 2010 Warner Advocacy Award winner:
Maryann Wahmann a patient or caregiver call toll free:
9 am - 9 pm EST 866-850-9555.
For your FREE information packet please e-mail us with your name address and telephone number !
Great Non Profits Click Above
New York Carcinoid/NET Support Group Meetings will be held on
June 2, 2013
September 29, 2013 December 1, 2013
1:30 PM- 4:30 PM
The Monter Cancer Center 450 Lakeville Rd Lake Success, NY 11042
CCAN NET Patient Conference Los Angeles , CA Saturday December 14, 2013 DTA soon!
June 8, 2013 - 8 am - 4 pm
Royal Park Hotel
600 East University Drive
Rochester, MI 48307
Net Cancer Patient Conf.
September 21, 2013 8 am - 4 pm
Renaissance Orlando at Seaworld
6677 Sea Harbor Dr
Orlando, FL 32821
2014 National NET Patient Conference
September 18 - September 20, 2014
Charlotte Marriott City 100 West Trade St
Charlotte NC 28202
Saturday June 1, 2013
2nd annual Smokin' Butt Fest
10635 Park Road, Charlotte, North Carolina 28210
10th Annual Celebration of Life Gala
Saturday November 9, 2013
7:30pm- 12:30 pm
5th Annual "Strides for Stripes" Zebra Walk
November 2, 2013
East Meadow, NY
10:30 am - 3 pm
CCAN NET Patient Conference Saturday December 14, 2013 HYATT REGENCY CENTURY PLAZA
2025 Avenue of the Stars, Los Angeles, CA
The North American Neuroendocrine Tumor Society
Guidelines for diagnosis and treatment of NET Tumors.